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Epidermolysis Bullosa
Home Care Programme

Standard Care Plan Epidermolysis Bullosa

Patient's mobility is restricted

 

Symptoms:

* Reduced mobility

* Reduced ability to walk

* Reduced social contacts

 Objective:

* Patient's mobility is optimal

 

 

Causal or relating factors Actions / Interventions

 

  • fear of pain, falling, bumping
  • see interventions in: The patient has lack of knowledge on how to prevent skin damage

 

 
  • blistering on the feet due to walking (especially in warm weather)

 
  • recommend walking barefoot as much as possible
  • recommend soaking feet regularly in cold water
  • recommend keeping feet as cool as possible
  • ill-fitting shoes

 

 

  • painful feet
  • recommend wearing shoes that fit properly
  • change socks and shoes regularly
  • chill socks and shoes by storing, prior to wear, in the refrigerator or freezer
  • wear thick cotton socks, possibly two pairs at once
  • prevent perspiration, possibly use antiperspirant
  • use inner soles
  • use bandage shoes
  • burst blisters as soon as possible

 
  • contractures
  • webbing or acquired syndactyly of the toes

 

  • visual complaints (poor eyesight or blindness)
  • fatigue or bad condition (as a result of poor nutritional status or anaemia)
  • The living / working / school environment restricts patient's mobility (for example, no lift, narrow staircase, crowded corridors, long distances,

    etcetera)
  • consult with physiotherapist to engage in exercises
  • recommend the use of aids / adaptations such as:stroller
  • see interventions in: The patient is completely or partially restricted in the ADL
  • see interventions in: The patient has difficulties with obtaining or maintaining a good nutritional status
  • adjustment of environment, working hours, furniture alterations, use of facilities, etcetera